It’s been quite a while since I last updated the blog. There have been many changes actually. For people that are in touch with us, they know about small posts Neill and I update here and there. I haven’t built the courage to sit down and write about our recent struggles without drowning my eyes with tears – so I’ll start here.
A few weeks ago we celebrated Mother’s day. It was my first Mother’s day with Luke and we celebrated in the NICU. He had another episode a few days ago and was on Phenobarbital – so I wasn’t able to hold him like I originally had planned. Although I would like to say “I wouldn’t have it any other way” – I have hopes that the next Mother’s day would be spent at home with a nice breakfast in bed =)
That day consisted of 3 visits to the NICU and a regular dinner out with Kailani & Neill. His Nurses that day [J & K] made a little card for me! It was such a nice little surprise waiting for me at Luke’s isolette. It read “Don’t be afraid to dream for out of such fragile things come MIRACLES.” Signed hand printed, Lil Luke.






